Blood Factor Replacement Related Websites:
National Hemophilia Foundation (NHF)
The NHF site offers a comphrensive collection of information regarding hemophilia. Their mission is education, research and advocacy on behalf of people with bleeding disorders.
Project Red Flag (NHF)
Real Talk about Women's Bleeding Disorders. Project Red Flag is the National Hemophilia Foundation's (NHF) public awareness campaign to reach the more than two and a half million women nationwide with undiagnosed bleeding disorders.
Additional chapters as follows:
Delaware Valley Chapter of the NHF
Hemophilia Federation of America
HFA is an advocacy organization for the blood clotting disorders community.
World Federation of Hemophilia
Through its various health care development programs and publications, the World Federation of Hemophilia works to introduce, improve, and maintain care for people with hemophilia and related bleeding disorders around the world.
The Haemophilia Society
The Haemophilia Society provides information, advice and support services in the UK.
Patient Services Incorporated
PSI is a non-profit organization primarily dedicated to providing health insurance premium assistance, pharmacy co-payment assistance and co-payment waiver assiatance for persons with specific expensive chronic illnesses.
The Body: The Complete HIV/AIDS Resource
Find just about anything you need to know about HIV.
LA Kelly Communications
Communications experts for the hemophilia community.
American Society of Hematology
The world's largest professional society concerned with the causes and treatment of blood disorders.
American Association of Blood Banks
AABB is an international, not-for-profit association dedicated to the advancement of science and the practice of transfusion medicine and related biological therapies.
Canadian Hemophillia Society (CHS)
Public health information for Canadian patients, family, professionals and researchers.
MedicAlert®
Information on MedicAlert® 24-Hour Emergency Medical Information Services.
Hepatitis Foundation International
This is a direct link to the International Hepatitis Foundation.
Government Agencies and Regulators:
Centers for Disease Control and Prevention (CDC), Hematologic Diseases Branch
CDC helps support a network of hemophilia treatment centers and has established a surveillance system, the Universal Data Collection project, to monitor blood safety and to conduct research on health-care outcomes.
Centros para el Control y la Prevención de Enfermedades
CDC en Español.
Centers for Medicare and Medicaid Services
The Centers for Medicare & Medicaid Services (CMS) is a Federal agency within the U.S. Department of Health and Human Services.
US Dept. of Health and Human Services
Information on the Ricky Ray Hemophilia Relief Fund.
National Heart, Lung and Blood Institute
Public health information for patients, family, professionals and researchers.
US Department of Justice
Information on the disability rights law.
Clinical Trials
Updated information regarding clinical research in human volunteers.
ADS Action Council Washington DC
Addresses the needs of people who are at risk for and living with HIV infection.
The Committee of Ten Thousand (COTT)
COTT is an advocacy and support organization for persons with HIV disease.
Plasma Protein Therapeutics Association
An advocate for the world's leading producers of biological therapeutics.
Factor Assist Programs:
Resources in the event you have an insurance issue.