The following links to sites external of MedPro Rx, Inc. are provided as a convience.
We hope you find them useful.

Gaucher Disease
Fabry Disease
Mucopolysaccharidosis I (MPS I)
Pompe Disease

Gaucher Disease

Children’s Gaucher Research Fund
Gaucher Registry
Genetic Alliance
Health Care Information Resources
International Gaucher Disease Associations
National Gaucher Foundation
National Institute of Neurological Disorders and Stroke
National Organization for Rare Disorders (NORD)
National Society of Genetic Counselors (NSGC), Inc.
National Tay-Sachs & Allied Diseases Association
Pediatric Database
Society for Inherited Metabolic Disorders

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Fabry Disease

United States

Center for Patient Advocacy
FSIG – Fabry Support & Information Group
Genetic Alliance
National Institute of Neurological Disorders and Stroke (NINDS)
National Organization for Rare Disorders (NORD)

Fabry Websites Around the World

Canadian Fabry Association
Canadian Organisation for Rare Disorders (CORD)
CLIMB – Children Living With Inherited Metabolic Diseases
Fabry Disease Society U.K.
Fabry Spain
Fabry Support & Informatie Groep Nederland
LDA – Lysosomal Diseases Australia
Morbus Fabry (Germany)
Nordic Fabry Website

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Mucopolysaccharidosis I (MPS I)

Follow this link to connect you to the Genzyme Resources Support webpage, where there is information for patients and families as well as healthcare professionals.

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Pompe Disease

Follow this link to connect you to the Pompe Community Website, where there is information for patients and families as well as healthcare professionals.

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