National Institute of Neurologic Disorders and Stroke (NINDS)

(www.ninds.nih.gov/disorders/lipid_storage_diseases/detail_lipid_
storage_diseases.htm)
Phone: 800-352-9424, or 301-496-5751
Address: NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824

The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders.

NINDS Vision

1. Lead the neuroscience community in shaping the future of research and its relationship to brain disease.
2. Build an intramural program that is the model for modern collaborative neuroscience research.
3. Develop the next generation of basic and clinical neuroscientists through inspiration and resource support.
4. Seize opportunities to focus our resources to rapidly translate scientific discoveries into prevention, treatment, and cures.
5. Be the first place the public turns to for authoritative neuroscience research information.

National Institute of Neurologic Disorders and Stroke (NINDS)

(www.ntsad.org)
Email: info@ntsad.org
Phone: 800-906-8723
Fax: 617-277-0134
Address: National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

NTSAD is dedicated to the treatment and prevention of Tay-Sachs, Canavan and related genetic diseases including the various Lysosomal Storage Disorders, and to providing information and support services to individuals and families affected by these diseases, as well as the public. Strategies for achieving these goals include research, family services, genetic screening, public and professional education and advocacy.