We hope you find them useful.
General Lysosomal Information
Gaucher Kids
Children’s Gaucher Research Fund
Gaucher Registry
Genetic Alliance
Health Care Information Resources
International Gaucher Disease Associations
National Gaucher Foundation
National Institute of Neurological Disorders and Stroke
National Organization for Rare Disorders (NORD)
National Tay-Sachs & Allied Diseases Association
Pediatric Database
Society for Inherited Metabolic Disorders
United States
Center for Patient Advocacy
FSIG – Fabry Support & Information Group
Genetic Alliance
National Institute of Neurological Disorders and Stroke (NINDS)
National Organization for Rare Disorders (NORD)Fabry Websites Around the World
Canadian Fabry Association
Canadian Organisation for Rare Disorders (CORD)
CLIMB – Children Living With Inherited Metabolic Diseases
Fabry Disease Society U.K.
Fabry Spain
Fabry Support & Informatie Groep Nederland
LDA – Lysosomal Diseases Australia
Morbus Fabry (Germany)
Nordic Fabry Website
Follow this link to connect you to the Genzyme Resources Support webpage, where there is information for patients and families as well as healthcare professionals.
Follow this link to connect you to the Pompe Community Website, where there is information for patients and families as well as healthcare professionals.